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10 Things from National Voices. For Members, Partners and Associates

13 August 2010

In this week’s issue:

Introduction

 

Get involved

§  GMC launches call for evidence

§  Philips seeks ideas to improve health and well-being of people in cities

§  London and South East Burns Reviews - Patient Panel

§  Opportunity for Trustees and Chief Execs to Take Part in Board Effectiveness Survey

 

Health & social care update

§  Paul Burstow seeking views

§  Care & Support Alliance survey

 

Members’ news

§  Cavernoma Alliance UK speaking event

§  Men’s Health Forum conference

§  Epilepsy Action releases report on specialist nurses

 

Consultation and reports

§  NNRU presents healthcare support workers research findings

§  King’s Fund report on the role of GPs in maternity care

 

Conferences and events

§  Migraine Trust public information event

§  GP commissioning: making it happen

§  BSR and RCP conference on health work and wellbeing

§  Epilepsy Action: Upfront about epilepsy – Young people’s drama workshop and family conference

§  CHRE Four-Country Conversations

§  Improving Clinical Effectiveness

§  More than a spoonful of sugar

§  Delivering quality care for people with rare and complex conditions

§  Transforming patient and staff experience, what works?

§  Inaugural Patient Experience Network National Awards 2010

 

Vacancies

§  MIND: Senior media officer.

§  Diabetes UK: Part Time Events Coordinator (Maternity Cover).

§  Cancer Research UK: Local Engagement and Development Manager (Imperial).

 

Introduction

 

Dear John,

 

The National Voices members’ conference, No Decision About Me Without Me, will be held in central London on 16 September and will be followed by our annual general meeting.

 

This is a key opportunity to:

 

·         provide a collective voice for National Voices members on the Health White Paper

·         provide feedback to the government.

 

The Department of Health is attending on the day and we will produce a report highlighting issues discussed at the event. 

 

Please come if you can. We are asking all member organisations to register by Friday 20 August. For more details visit our website. The Health White Paper and associated consultation documents can be found on the Department of Health website.

 

We look forward to seeing you there,

 

Jules Acton

 

Director of Engagement and Membership

 

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Get involved

 

GMC launches call for evidence

The General Medical Council has launched a call for written evidence to inform the scope and content on new child protection guidance for doctors. Information will be collected around four main themes:

 

·         Consent and confidentiality when doctors work with children and their families

·         Doctors’ relationships with parents, carers and the wider family

·         Doctors working in partnership with other professionals and agencies

·         The training and other support available for doctors.

 

To view the full questions and respond, visit the GMC webpage.

 

Philips seeks ideas to improve health and well-being of people in cities

Philips is looking for simple solutions to improve the health and well-being of people living in cities.  To help translate these ideas into reality, three award grants totalling €125,000 are available. The overall winning idea will receive €75,000, while the two additional ideas will each receive a grant of €25,000. Entries must be submitted on philips.com/because by 28 November 2010.

 

London and South East Burns Reviews - Patient Panel

The London and South East Burns Network (LSEBN) have recently begun a review of specialised burns services across London and the South East. They are seeking to engage with patients and patient representatives at a very early stage of the process and are seeking patients with some experience of burns services, or who would like to contribute to this review. The invitation letter for this panel can befound here.

 

Opportunity for Trustees and Chief Execs to Take Part in Board Effectiveness Survey

This confidential research study seeks to understand more about the performance of Boards of Trustees of UK charities and how Board effectiveness influences charity performance. This questionnaire seeks opinions from Trustees and Chief Executives for perspectives on their board and its impact on charity performance. Neither you or your charity will be identified in any publications resulting from this study. An electronic copy of the final report will be sent to all who request it and provide their email address.

 

The survey, which should take 15 – 20 minutes to complete, can be found athttps://www.surveymonkey.com/s/CDQZKLJ and will be open until 24 September. If you have questions about this study, please contact the researcher, Dr Kirstine Knox, on mpm08kk@mail.wbs.ac.uk or by calling 07870 560039.

 

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Health & social care update

 

Paul Burstow seeking views

The Department of Health has released a letter from Paul Burstow, the minister for care services, seeking views on the key priorities, supported by evidence of good practice, on what will have the greatest impact on improving carers’ lives in the next four years. To read the letter and respond go to the Department of Health website.

 

Care & Support Alliance survey

The Care & Support Alliance is running a survey to review how social care services have changed in the last year. Click here.

 

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Members’ news

 

Cavernoma Alliance UK speaking event

Cavernoma Alliance UK is announcing a talk by neurosurgeon, Prof. Dr. Bertalanffy, he will speak at the London CaverHub 2010 on 23 October on brain stem cavernomas. See the Cavernoma Alliance UKwebsite for more information.

 

Men’s Health Forum conference

The Men’s Health Forum will shortly be advertising a national conference on men’s health to be held at the University of Warwick on 1 October 2010. Jointly organised by the Men’s Health Forums and Coventry City Council, this conference will feature debate led by leading experts in the field of men’s health. This will be an interactive conference and will seek not only to investigate why in the 21st century men are still dying prematurely from preventable diseases, but also to identify what can be done about it.

 

Epilepsy Action releases report on specialist nurses

Epilepsy Action has released a report, Best care: The value of epilepsy specialist nurses. This report is part of a new campaign to protect and promote epilepsy specialist nurses (ESNs). The full report can be read here. For more information about this campaign, see the Epilepsy Action webpage.

 

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Consultations and reports

 

NNRU presents healthcare support workers research findings

The National Nursing Research Unit (NNRU) has released a report, Moving forward with healthcare support workforce regulation, in which it makes a cautious case for extending regulation to currently unregulated healthcare support workers. See the press release on their website (July 2010) and to read the report click here.

 

King’s Fund report on the role of GPs in maternity care

The King’s Fund have released a report on the role of GPs in maternity care. It asks whether there is still a role for GPs in maternity care; attempts to define a future role for GPs in pre-conception antenatal and postnatal care, and discusses the merits of shared care between GPs and midwives. See theKing’s Fund website.

 

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Conferences and events

 

Migraine Trust public information event

4 September 2010

The Migraine Trust, in association with the British Association for the Study of Headache (BASH), is organising a public event to mark the start of Migraine Awareness Week 2010. It is aimed at those living with migraine and headache and for those who would like to find out more. See the Migraine Trustwebsite.

 

GP commissioning: making it happen

7 September 2010

Run by the King’s Fund, this will explore the challenges of implementing GP commissioning and how it can be effectively translated into practice. See the King’s Fund website.

 

BSR and RCP conference on health work and wellbeing

27 September 2010

The British Society for Rheumatology and the Royal College of Physicians are running a conference on health work and wellbeing. This conference will share the latest research on musculoskeletal conditions, and highlight emerging clinical practice to help patients stay in work. More information can be found on the Royal College of Physicians website.

 

Epilepsy Action: Upfront about epilepsy – Young people’s drama workshop and family conference

2 October 2010

This double event by Epilepsy Action is aimed at young people with epilepsy, their families and carers.A drama workshop is open to 30 young people with epilepsy aged between 13 and 17 years. The workshop is designed to empower young to share their experiences. The conference is aimed at young people and their families and carers, and runs alongside the workshop. For more information contact Nicole Crosby-McKenna on 0113 210 8800 or email n.crosby@epilepsy.org.uk alternatively visit theEpilepsy Action website.

 

CHRE Four-Country Conversations

18-28 October 2010

The Council for Healthcare Regulatory Excellence (CHRE) are hosting series of ‘Four-Country Conversations’. These meetings give updates on what they are doing to make regulation more patient-centred and are an opportunity to give your views to CHRE. For more information, visit the CHREwebsite.

 

Improving Clinical Effectiveness
22 October 2010

This Capita conference provides guidance on how NHS organisations can support the delivery of safe, effective, patient-focused services, while realising £20 billion of efficiency savings. See the conference webpage.

 

More than a spoonful of sugar

12 November 2010

‘More than a spoonful of sugar’: Maximising achievement and wellbeing for young people with medical conditions in mainstream schools is hosted by the National Union of Teachers in partnership with specialists in anaphalaxis, asthma, diabetes, epilepsy and other conditions prevalent in childhood. See the webpage.

 

Delivering quality care for people with rare and complex conditions

16 November 2010
This conference in London, hosted by the Specialised healthcare Alliance (SHCA) is aimed at a multidisciplinary audience and seeks to deliver tangible progress towards core quality standards for specialised services covering issues like diagnosis, treatment, care, commissioning and outcomes. For more information, visit the SHCA 
webpage.

 

Transforming patient and staff experience, what works?

6 December 2010

This King’s Fund conference looks at practical ways to transform the experience of patients and staff to develop a high-quality, cost effective health care service. See the website.

 

Inaugural Patient Experience Network National Awards 2010

19 January 2011

This is a new national awards programme by the Patient Experience Network (PEN) which seeks to recognise, celebrate and share examples of great initiatives in patient experience. Winners will be chosen from all healthcare settings according to categories based on key domains of patient centred care. See the website.

 

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Patient representative sought for NHS North East Treatment Advisory Group

 

The NHS North East Treatment Advisory Group (NETAG) is seeking to appoint a new member for the role of deputy representative for the position reserved for patient or lay representation. The role is voluntary although NETAG will reimburse all reasonable expenses. For more information see the job description.

 

Vacancies

 

MIND: Senior media officer. See details.

 

Diabetes UK: Part Time Events Coordinator (Maternity Cover). See details.

 

Cancer Research UK: Local Engagement and Development Manager (Imperial). See details.